From Hope regarding Alana:
This past Thursday I met with two representatives from PSA HealthCare, which is a pediatric private duty nursing program. The women were very informative about the company and what to expect. I had many questions for them. My questions were all answered to my satisfaction. The company is asking the insurance company for 56 hours per week. I'm not sure if we will get the hours or if we will need them all. As a family we are discussing what times would be best and most beneficial to Alana and the family. I am starting to get excited about getting some help. Her care is tremendous and tiresome. After meeting with the two women on Thursday and getting to see a little how our family functions, they believe they have to perfect nurse for Alana. I hope they are right. I have been praying that the Lord send the right person to our home. Hopefully all the details will be ironed out in the next week. Please pray that all works out well. Alana has been doing pretty well. She still continues to cry a lot. Not sure what the issue is. Hopefully there is nothing wrong with her blood work. Any little decline in her labs can affect her in an adverse way. I do look forward to Mondays because she gets her blood work and I can see if she is doing ok. I get a little apprehensive between Monday and the next Monday. When she was in the hospital she had labs done everyday. So, we also knew right away if something was not right. This is the one thing I have had a struggle with, not knowing how she is doing inside her body and having to wait a week for the answer. Patience and trust has been the lesson for me. God knows what work needs to be done in me.
You can follow Alana's updates at http://www.caringbridge.org/visit/alana_kay