Friday, September 12, 2008

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I can't say it enough.... thank you so much for praying for our Ethan. He's doing well, overall, but he's starting to feel a little yucky as his new cells are starting to engraft. They say this is normal for each transplant patient. The body is working overtime as these new cells begin to take shape in a new body, and sometimes it takes a little toll on the patient. Flu-like symptoms (body aches, excessive fatigue, slight irritability) and a general "I don't feel good" type of attitude is what we can expect over the next several days. Please pray that in the midst of this, Ethan can remain comfortable and rested.

Pray also for this new approach we are taking with his rash. It's so sad to see his little fingers scratching his neck and arms & know he is so uncomfortable. It's been determined through some trial and error that he has a combination of a yeast rash and a GVHD rash. So over the next couple of days they are going to increase his steroid dose (to treat the GVHD) and increase his anti-fungal medication dose (to treat the yeast). Please pray this change in his treatment does the trick! Also, pray that he doesn't have to remain dependent on the steroids as they have made him a bit more "swollen" in the face and more plump all over.

I am so thankful to the Lord that He took care of me last night. I had a migraine attack hit me in a fierce way last night. Adam had took the day off yesterday to spend time with me and Ethan, thankfully he was able to take care of Ethan in the evening before going back to the hotel so that I could rest. He stayed until Ethan fell asleep, and was so sweet to ask the nurse to be extra attentive to Ethan because I was asleep as a result of a migraine attack. Well, Ethan slept for 8 hours in a row!!! Which happens when we are at home, but NEVER HAPPENS when we are in the hospital. And when he woke up at 4:00 this morning, the nurse took over and fed him and played with him, allowing me more rest. It was so wonderful and I was able to get over the migraine attack without having too much to handle as far as Ethan goes. Thank you for that blessing, Lord!

I'm learning that there is still sweetness in the Lord when He doesn't remove the problem or situation from you, because He faithfully stands by you and provides for you even in the midst of it. Depend on Him for everything. Every thing. "It" might not go away, but neither does He.

p.s. - Ethan's blood count/ANC dropped slightly to 310 today. But that's okay, because we're still truckin' along...

12 comments:

Lorri said...

I'm learning that there is still sweetness in the Lord when He doesn't remove the problem or situation from you, because He faithfully stands by you and provides for you even in the midst of it. Depend on Him for everything. Every thing. "It" might not go away, but neither does He.

Kasey, you are so darn quotable! I"m going to have to put you on my blog again! The Lord must be so very proud of how you are doing in this testing of your faith! I rejoice with you over the new cells growing in baby Ethan! Praise God! Love, Lorri

Vicki Miller said...

Kasey,
I don't think I have ever commented before now. (I am the mother of one of Amy Corbin's friends, therefore she is a friend of mine. That is how I got connected to your blog.) When I read your blog this morning, I was reminded of a Psalm that I read last night and I thought that the picture that came to my mind was so beautiful. It caused me to picture God as the strong oak tree that stands in my front yard providing shade for my home from the Texas sun. That tree doesn't take away the sun, but sheilds the sun and gives my home comfort.

Psalm 121:5.....The Lord himself watches over you! The Lord stands beside you as your protective shade. (NLT)

I check your blog daily and pray for Ethan, as well as you and Adam. Because I am a grandmother, I also pray for your parents as they sit at home and anxiously wait for news. May God give you all shade!

Vicki

Mandy said...

Praise The Lord!

Carrie Comstock said...

I got a tear in my eye when I read that he slept 8 hours. Just when you needed it. How wonderful.

Praying for his rashes and all the other stuff too. Thanks, as always, for the updates.

Rejoicing and praying...

Moz and Pam said...

Praying daily for all 3 of you. Thanks so much for sharing your miracle with us!

Anonymous said...

"... for so he giveth his beloved sleep." Ps. 127:2b Our God is so great and so good! What an awesome thing to know He loves us!

Praying for all of you! We love you so much and miss you bunches!

Hugs and sloppy kisses,
Mary Parker

Collegegirl said...

Kasey-your family has been in my thoughts lately. I am so impressed with baby Ethan and all that he is going through. Hang in there and God is watching over all of you!!!
~Elyse~

Anonymous said...

"Blessed be the Lord, that hath given rest unto his people...there hath not failed one word of all his good promise..." 1Kings8:56
We continue to pray for each of you daily.
Love you muchly, Ray and Barbe

littleleaps said...

I am thrilled that Ethans counts are coming in. Lydia's ANC bounced up and down quite a bit. THe doc's were never worried, but as a mom, well, that is a different story. I am so glad that you can enjoy some of the sweet moments. God gives so many in the midst of turmoil. I am still praying for you and your sweet boy!

Anonymous said...

We love and admire you and Adam!

And this I pray... that ye may be sincere and without offense... being filled with the fruits of righteousness, which are by Jesus Christ, unto the glory and praise of God. Philippians 1:9-11

T and H

Elizabeth said...

Praise the Lord! Praying for baby Ethan rashes and all 3 of you..
Sending ur way With alot
of Love, Elizabeth&Family

Nicole Bennett said...

Hey Casey,
Just wanted to say hi, i check up on ethan every day through your blog and pray for him daily. I was on a caring bridge site for one of my other patients and she had this posted so i thought i would share it with you.

He's My Son
I'm down on my knees again tonight
I'm hoping this prayer will turn out right
See there is a boy that needs Your help
I've done all that I can do myself
His mother is tired
I'm sure You can understand
Each night as he sleeps
She goes in to hold his hand
And she tries not to cry
As the tears fill her eyes
CHORUS:
Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow
See, he's not just anyone
He's my son
Sometimes late at night I watch him sleep
I dream of the boy he'd like to be
I try to be strong and see him through
But God who he needs right now is You
Let him grow old
Live life without this fear
What would I be
Living without him here
He's so tired and he's scared
Let him know that You're there
CHORUS
Can You hear me?
Can You see him?
Please don't leave him
He's my son

You guys are always on my mind, cant wait for you to come home!

Nicole Bennett MS8
sung by Mark Schultz