Friday, September 26, 2008

gentle leading

It's hard to believe that it was only one week ago today that we were preparing to be discharged from Boston Childrens Hospital. I'm amazed that it has only been a week! Adam has been home with me and Ethan since last Friday (he took this week off) and we've been able to do so much together and around the house.... making way for our growing little boy! And having to go back to Boston twice this week (Monday and yesterday) proved to be quite simple overall - even if it does require leaving the house at 6:45 in the morning and getting back between 4:00 and 5:00 in the evening. It has just been so refreshing to be home and allow Ethan various playful opportunities and experiences that he couldn't have in the hospital.

I do have to be honest, though. My mood has fluctuated quite a bit these past few days. There have been moments of irritability and other moments of frustration... and I've managed to go all week without a single, meaningful, quiet moment with the Lord... but I'm praying for a change in all of that. I won't bore you with the list of excuses that have been in my way, but I will ask that you pray for me as I settle into a personal routine that allows me the time I need to focus on further becoming the woman and mother God would have me to be. I don't want anything lost in all we've had to endure as I get back to a somewhat normal home life... I'm not sure if that makes sense, but in a way, being at the hospital off and on over the past many months has left me feeling like I know what the Lord would have me do while we are there... while being back at home leaves me feeling unsure of what to do in some ways. Though I desperately want to be at home and not at the hospital!

Oh goodness, I should stop this rambling before my thoughts loop back around again and I attempt to say the exact same thing, but in a worse way than I already have! Before I go, though, I have some additional pictures of Ethan and his week at home. Look at those chubby cheeks! Hopefully he can be weaned off the steroids soon! He's becoming more active each day and I'm so thankful for that. Each appointment we've had this week has gone very well. Please pray they continue to do so. Please also pray for me as next week I will be taking Ethan to Boston on Monday and Thursday by myself as Adam goes back to work. There's a lot that is involved in these appointments (mostly the time it takes) and I need the Lord's help to ensure everything runs smoothly.






Isaiah 40:11 - He will feed His flock like a shepherd; He will gather the lambs with His arm, and carry them in His bosom, and gently lead those who are with young.

8 comments:

Anonymous said...

Precious pictures of Ethan, we love them!! I am so glad Adam was able to stay home this week. I'll pray as you continue to transition to your "at home" routine, as well as your traveling next week with Ethan. Have a wonderful weekend as a family. Love Megan P

Anonymous said...

We love the pics of Ethan. His smiling face and bright eyes tell it all... So thankful that you are home and together again with Adam. We will be continually praying for you as you "adjust" and as you travel. (there will be a hedge about you and Ethan in that little car of yours) I'm picturing a literal "hedge" as you're going down the Mass. Pike and I'm sitting here laughing to myself. tee hee Love you muchly The T's

Megan said...

What a doll. Ethan is adorable and smiling as always. He looks very happy to be back at home.
I was thinking about you the other day right after you left the hospital. It really hit me, the highs and lows you go through. This is a roller coaster ride, of course you are going to feel so many different feelings and they won't all be positive and up beat. Allow yourself to feel all the emotions you go throuh, I truly feel if you really go through the emotion you can move on to the next. I don't know if I make sense, sorry. I will continue to pray for Ethan, Adam and you every day and night. I hope you all have a wonderful weekend. God Bless you all.
Megan

Lorri said...

Love that verse.
Love that you are at home.

Prayers continue!

kari said...

just *loving* those sweet chubby cheeks!!!

Sending many hugs, prayers, and kisses your way!! :)

Collegegirl said...

Love those precious cheecks. Still praying for all of you. You will do just fine by yourself though. Look at all you and your family have accomplished!
~Elyse~

Lori, Landon and Logan said...

He is so adorable! Can I come see him? I can come without kids if you need me to for his immunity. I have something for you too so if it's not a good week send me your address.

Elizabeth said...

We love the pic of baby Ethan. Love those precious cheecks.. Still praying for all of you!!
Love,
Elizabeth & Family