Thursday, August 7, 2008

Hmmm....

Hi everyone, I can't login to Ethan's site (again). I've asked Hollie to post this message for me (thank you, Hollie). I can view his webpage, but all of a sudden I can't login to actually update it. I'm not sure what happened. Hopefully I can re-connect with someone tomorrow.

Today was a really good day for Ethan. Thank you so much for praying. His demeanor was actually even better today than it was yesterday... and I didn't consider yesterday a bad day. He was very active this afternoon and had a healthy appetite. I am so thankful for your prayers as the Lord indeed has protected Ethan these past few days. Tomorrow is his last day of radiation. So far, the only side effects that are visible is his skin. He just looks a little sun-kissed and his lips are pretty chapped/dry. That radiation bed is like a tanning bed.... and he's got more of a tan than I do! Vaseline is helping his lips, but he wipes it right off with all the toys and such he puts in his mouth. Pray that his skin doesn't get further irritated in the days ahead as it could start to peel and become uncomfortable for him. Although right now, it really just looks like he's been in the sun a little.... not bad at all. I can't properly describe how great his attitude was today. He was so happy and content and the amount of formula he took this afternoon and evening was wonderful! Be in prayer for this weekend. He starts taking heavy doses of steroids along with his chemo, and they say that the steriods can make babies quite irritable (and that's putting it nicely), sometimes the steroids make children sleepy.... so I'm praying for the sleepy and not the miserable. Also, right now, Ethan has not shown any signs of the mouth sores, it's still a little early, but I'm praying if/when they arrive, that they aren't too painful for him.

He did take his medicine better today, although it is quite a chore trying to give it to him. Continue to be in prayer for that. I was very encouraged with the way things went today. Thank you, Lord.... And thank YOU for praying.... your prayers certainly make a difference.

On a side note, on the side of my blog, you see two links of babies I've asked you to pray for. I've never met either of the families, but just heard about their situation through other sites or people. Anyway, baby Aiden and his mom are here in Boston (from Texas) hoping the specialists here can help find the cause of Aiden's ongoing illness. His mom and I will be meeting for the 1st time tomorrow (she's on the 9th floor and we are on the 6th) and I'm looking forward to meeting this woman who's son I've been praying for - face to face! How special that the Lord would bring our paths together! Please be in prayer that their time here in Boston will be well spent. Her baby boy has been sick for most of his 9 months of life without knowing the root cause. Pray they can help her here! Pray for her as well, Hannah is her name, she is away from her two other sons and her husband during this time (they are in Texas!).

Thank you so much for your emails and comments. I read them all... and cherish every single word.

13 comments:

Kasey (Ethan's Mommy) said...

Kasey, I HATE you are unable to get back onto E's sight...but at least we can get these requests out so everyone can pray. Praying faithfully for you and Ethan. Praying also for sweet Aiden/Hannah (what a blessing you all are there together!!!). Hugs!

Hollie said...

SORRY! I forgot to log out as you before I left a comment! :)

Lorri said...

not trying to be like the blog stalker, but clicked on tonight and saw your update. Please ask your doctors if they can let you use Biafine lotion on Ethan for his burn. It's a very good burn lotion - they may have some to give you or you may need a prescription. Another good thing to try that they might have for you is pure lanolin, very soothing. If the burn gets bad, there are Radiadress gel sheets, but don't know if that's something they use with babies. My radiation burn was severe so that's how I know all this! Bless you!

Carrie Comstock said...

I'm so glad to hear baby boy had a good day today!! That is just great news.

Marge said...

Kasey.
I know you most have been a real happy mom to be able to feed Ethan. I wish I could have been there.

Oh I’m just so excided just to hear all the wonderful reports you are able to give us on what our great heavenly father for all of you.
God is just so good.

Praying For You All
Marge

shera said...

Kasey, such great news that things are going well!! We will definitely continue to pray for you and Ethan. Your spirits seem good as well.

Please feel free to let others know what we do at Faith Lifts for families with sick children. Everything offered to you, even by me, is what we do ;0).

Blessings and continued prayer,
Shera

Moz and Pam said...

How wonderful to see day by day how the Lord is answering our prayers! What a great & compassionate God we serve! How awesome of God to give you a fellow believer right in the same hospital! Yet another example of how precious you are to Him!

Anonymous said...

So glad Ethan is handling everything so well. We're all continuing in prayer.

Strangest thing...Last night at 7:30p.m., as I was putting my groceries in the car and thinking, "I hope my guys get home from football practice before me so they can bring all this food in." :)... All of a sudden, there you were in my thoughts. I don't know exactly what made me think of you, but I immediately started praying, knowing the Lord brought you to my mind for some reason.

Just wanted you to know that I don't just pray for you when I "log in" but several times throughout the day, everyday... as I'm sure everyone who reads your blog does.

Continually praying,
Jennifer

Anonymous said...

P.S...
They didn't make it home before me... had to bring them in by myself. ;)

FalkFamily said...

I love to hear how our prayers for Ethan are being answered - I hope my prayers for you are being answered as well (i.e. some precious sleep for sure). It gives me goosebumps to see the Lord's hand in all of this from the people you have met to the amazing way Ethan's little body is handling this illness. Truly all of this is "working for good".

Continued prayers for you and Ethan - and Adam, too. I can't imagine this is easy on him to have to try to carry on the day to day things being away from you two.

Your Husband said...

Kasey,

You are an amazing mom and wife and its an honor to be your husband. I love you so much and admire your strength. The Lord will help us through this trial and I am here for you every step of the way.

Goodies for Mom said...

Saying lots of prayers for all three babies. It is amazing how God brings people together who need each other isn't it?

Bill said...

Dear Adam and Kasey,

We are still praying for you in Colorado...

Here's a link to pictures from a client of mine who climbed Colorado's highest peak (Long's) with Ethan's name in her pocket:

http://picasaweb.google.com/SylviaLeinz/LongsPeakHike90608

http://pages.hikefordiscovery.org/rm/rockymt08/sleinz


If you look close at the "zoomed in names" you will see your precious son there.

May God grant you peace and strength...

Bill Roach (bill@chec.org)