Thank you for praying... Ethan did receive his cord blood transplant yesterday afternoon at 3:00. It was somewhat anti-climatic, but we made a memory of it anyway! I had the video camera out as the nurse hooked up the new donor blood cells to Ethan's IV line and as I was talking to Ethan on camera.... he fell asleep. But that's okay, Adam and I were fully in the moment even if our little guy was tired.
The transfusion itself was quite simple. It only took about an hour for all the new cells to be completely delivered into his little body. However, the night before (Monday night) Ethan did start to develop hives... a slightly delayed reaction to the ATGAM (horse hormone) that he had received the past 3 days. The hives started out small, but they soon took over his whole face and head. He has a few on his chest and abdomen as well. It's VERY sad to look at him covered in red splotches, but we've been assured it looks worse than it is. He's getting benadryl around the clock to help with the itching.
Last night, Ethan was not feeling very well. I couldn't get him to fall asleep, and around midnight he got chills, and shortly thereafter, a fever. Due to the fever, he will now be on heavy antibiotics to protect him against any type of infections. I don't like this, however I know it's necessary. I say that because, these are the antibiotics that have been known to cause hearing loss and kidney failure with excessive and prolonged use. Yes, I'm trusting the Lord with those "issues", but as a mom... well, I just don't like the idea of such possibilities.
He's been okay today, but it's obvious he is not feeling well. I'm sure the 18 medications he is on every day (yes, I said 18, and that is NOT an exaggeration.... and some of those he takes several times a day!) have taken a toll on his energy level. I know all of this has taken a toll on me. I've not been able to sleep much at all during the night. Last night it was due to Ethan not feeling well, but the past nights it's been hard to sleep with the nursing staff coming in and the beeping monitors that are hooked up to Ethan. Needless to say, I've still been a bit of a grump. I begged God for rest last night.... but it didn't come. I'm trying to not let it phase me, and I know enough to know that God is there even when we do not "feel" His presence... but, I'll be honest... I'd sure like to "feel" Him today. Not because Ethan is doing poorly, because all in all, he is doing well. But more because I am doing somewhat poorly and just need a touch from the Holy Spirit. A mini revival in my own heart.
I will leave you with a few more pictures. The packet of blood that you see is the actual transplant that Ethan got yesterday! Those are the precious new donor cells that are now swimming around in Ethan's body. Pray that they engraft quickly into his system! The red-faced child you see in the pictures would be our little cutie, covered in hives yesterday (unfortunately, it's much worse today). The first picture is the sign the staff put on Ethan's door to mark the occasion.
Oh yeah, I'm still having to come to Starbucks...at least I have found a new drink that I like!