Tuesday, June 3, 2008

We had a rough day today. Ethan has been abnormally fussy and refusing to eat. We've not been able to pinpoint what the problem could be. We know he's in pain and uncomfortable, but we can't figure out the root of the problem. I asked for Tylenol to be given to help calm him. He was slightly better with the Tylenol, but not for long. We are going to put him on a stronger pain medication to see if that helps him. We had a stomach x-ray done to see if he might be constipated (a side effect of one of the chemo meds), but it came back perfectly normal. Other side effects include jaw pain and nerve pain.... both of which are hard to detect in a baby. He's had such a rough day. Please pray that we can narrow down the cause of his discomfort and that the new pain medication works for him.

Thank you for the prayers for his central line and the bleeding issue. The past few days the blood has stopped and seems to be under control for now. This will always be an area of concern, but as of now things look okay. We've also changed the antibiotic that Ethan gets because we believe it's causing the vomiting that Ethan has experience lately. We are changing to a once a month antibiotic for him, so be in prayer that his body tolerates it much better. The antibiotic is necessary to fight off infection while his immune system is so low... a primary concern would be pneumonia.

I was sent a very fun thought today via email regarding Ethan having 12 preliminary matches for the bone marrow transplant. The person wanted to point out the significance of the number 12 throughout the Bible -12 disciples of Jesus, 12 tribes of Israel, 12 baskets of leftover food after Jesus' miracle when feeding the 5,000. 12 is an important number in various areas of God's plan throughout the Bible and what a special number it has become to our family as of late.

I'm sure these 12 individuals have no idea how much our family is hoping and depending on one of them to be the blessing our son needs to save his life. What an awesome thought, that one person can help another person in such a life changing way (literally!). We continue to pray for whoever that special person is.... what a selfless act to willingly allow yourself to go through a slightly painful "surgery" in order to help save the life of someone you've never met. How amazing would it be if someone reading this blog and keeping up with Ethan's situation happened to be one of the 12. With all the people around the world that follow our story, I wouldn't be surprised.

Thank you for all of your prayers, love and support. We are able to function every day and find small spurts of joy because of your caring and thoughtful actions.

1 Corinthians 1:2-4
Grace be to you and peace from God our Father, and from the Lord Jesus Christ. Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.

5 comments:

Anonymous said...

thank you for the update today. don't be alarmed if he is teething. all 3 of my kids started teething around 4 months. it might take him a couple of months to actually produce a tooth though. try a teething ring that has been in the frig for a while. sometimes that works. hopefully it doesn't irritate him more. :)love and prayers,
michelle

Hollie said...

You, Adam and Ethan are on my mind constantly! I am praying right now that Ethan's pain gets better from the new medication.

Praying so hard for you and Adam and the unimaginable things you selflessly do for your little boy every single day! You guys are amazing parents! Hugs!!

Megan said...

I am very sorry to hear Ethan is uncomfortable and in pain. We will continue to pray for Ethan to be pain-free. Yes, he could be teething and when they do they aren't themselves, my 1 year old finally just got her first tooth now 4 more are coming in so no more sleeping through the night again for awhile. We will pray the new meds help and of course we will pray for the norm that we always do. The best comfort for a baby is their mommy and Ethan sure has that. We are also praying for you Kasey. As a mother my heart is broken and aching for what you and Adam are going through.
Love,
Megan

Jennifer Wiser said...

Hi Kasey,
Checking in tonight to see how Ethan's day has been. Sorry to hear it's been a little rough today. We are praying tonight for some peace and rest and that Ethan will begin feeling better soon and that the doctors or you can figure what is causing his pain so that it can be treated promptly. We know God can do above all that we can ask or imagine. Trusting that He will do so tonight and in the days ahead.
Always Praying in Michigan,
Jennifer (for the whole Wiser family)

Anonymous said...

Praying that Ethan has a better day today!

All three of you are in our thoughts & prayers.

Love,

Auntie Joann