We got to see Ethan's primary oncologist who set up Ethan's treatment protocol back at Ethan's initial diagnosis. He built the "plan" and others helped execute it, but it was good to see him. He walked by our room and stopped in to see how things were going with Ethan. I was able to have a good conversation with him about Ethan's skin issues. The good news is (and I've known this was true) that Ethan's rashes are all a result of his cord blood transplant and his body still accepting the newly growing cells. The bad news is, these types of rashes are never easy to treat and have many root causes (fungal infections, etc). We discussed a plan we're going to be using this week to see if there's any improvement. It requires one ointment on the upper part of his face, and a different ointment on the lower part of his face. For you leukemia mom's out there - and anyone else who's curious - we're treating the upper with Protopic and the lower with Nystatin. And treating the diaper area with an anti-fungal cream (Vusion). Pray these do the trick!
Ethan brought tears to all the nurses when it was time to draw his blood. It was so sad.... he screamed and cried as soon as they walked in.... he just knew. But thankfully again, they found the vein the first time, and got all the blood they needed quickly. And he even got a toy afterwards.
All in all, a very good visit. I'm hoping we start seeing changes in his face and eyes soon. And I'm trusting the details to the Lord. I make myself crazy when I try to figure out all of this on my own and get too caught up in the in's and out's of it all. I was reminded today, to leave it all in God's capable hands. Maybe that was the reason for all of this anyway.... a lesson for this momma of "letting go" and trusting Him.
Thank you so much for your prayers! I read this verse and thought of you, my blog family... our prayer warriors. I pray God blesses you for every kind action done and prayer you've ever spoken on our behalf!
The generous soul will be made rich,
and he who waters will also be watered himself.