Wednesday, September 10, 2008

prayer needed today *update*

I won't delete what I posted below a little over an hour ago, but I do want to make an update. I still need your prayer for Ethan's rash and his discomfort, but the update is my change in attitude. A brief conversation with a sweet and honest friend this morning reminded me that though my moods may change - my God doesn't. I am BEYOND ready to be back home, but I can honestly say that I don't want anything that is outside of the Lord's plan and purpose. I'd rather be in the midst of the storm with Him, than in the comforts of sun and breeze without Him. So we're still here, and that's okay. It's been 6 weeks, and that's okay. He's answered every prayer. Every single one. And I'm reminded this morning how wonderful He's been.
  • I didn't want Ethan's spleen to have to be removed - it wasn't.
  • I asked that he'd not get painful side effects and sores - he didn't.
  • I didn't want him to have to have a feeding tube - he hasn't.
  • I didn't want him to need to go to ICU for any part of the transplant or recovery - he hasn't.
  • I asked for the time/the weeks to go by fast - they have.

And the list truly goes on and on....

And I know the answered prayers will continue.

  • I'm asking that Ethan's rash go away - I know it will.
  • I've asked that we be able to go home soon - I know we will.
  • I've asked for healing and protection in Ethan's body - I know it's being done.
  • I've asked for restoration - I know it's coming.

And...

  • I've asked for a miracle.... I know it's happening.
____________________________________
previous post earlier this morning:

Well... the bad mood of Tuesday, now goes by the name, the bad mood of Wednesday. But I'm too tired to go into detail as to why. Other than to say I feel like the walls in this hospital room are starting to close in on me. But I digress... my purpose of getting online this morning was simply ask a favor of you....

Please be in prayer for Ethan today. He has a rash that's been brewing for several days, but it's now more "full blown". They aren't sure the cause of the rash, and believe that there are 2 separate rashes from 2 separate things. Maybe a reaction to one of his medications, maybe a yeast rash, maybe signs of graft-versus-host-disease.... but one thing is for sure.... it's very itchy for Ethan. He rubs his feet together extremely fast or rubs them on me or the bed to try and get relief. He scratches his legs and his neck all the time. Ointments and lotions that we've tried have not been working. Benadryl helps a little, but he can only get that every 6 hours. Needless to say, this discomfort greatly affected his ability to settle and sleep last night.... as well as mine. I hate to see him struggling for relief, so please pray that we can get a handle on what's causing the rash so that we can know how to treat it... mainly so he's not so uncomfortable. Everything we've tried so far has not been working.

7 comments:

Griffith Family of Texas said...

Poor baby and poor mommy! That sounds miserable especially after so many nights of less than good sleep.

You guys are in my prayers.

Found and keep up with you through Hollie. She's a very good friend.

Ann

Jennifer Powers said...

Oh my goodness. Poor baby. Praying right now for the little guy!

Jennifer

Kelly said...

Poor little guy. We'll pray that this clears up so both of you can rest!

Anonymous said...

We are praying for Ethan that they are able to give him relief and that his rash clears up.

Hopefully you both can get some sleep today.

Sawyer Family

Hollie said...

You are on my mind constantly! Praying hard E gets some much needed relief (and Mama, some much needed rest!). You are such an inspiration, Kasey. You and E are BOTH such TROOPERS!!!!! Love & Hugs!

Megan said...

Praying for relief right now for little Ethan and rest for both of you. I am glad you are reflecting on all he has done and thinking about what he will do. My heart goes out to you. I wish I could give you a break from this. This will not continue long and you will be back in the comforts of your own home with your beautiful family before you know. Soon this will all be distant memmories.
God Bless you all!
Megan

Janelle and Ella said...

Praying right now that God will just take his rash AWAY! In Jesus' Name!