Since I said a mouth full on Friday, I will keep it short and sweet today....
Thank you so much for praying for Ethan. This past round of chemo (his 4th round overall) was the best round as far as side effects go. No mouth sores, no nerve or muscle pain (judging by his lack of inconsolable crying), no eye swelling, and no new rectal sores. AND, as an added bonus, Ethan slept through the night each night we were at the hospital - even with all the poking and prodding they have to do every couple of hours during the night - which means mommy slept through the night, too (I'm talking 8 to 9 hours)! What a difference sleep can make.... even if it is in a hospital bed. Ethan's fissures (the rectal tears) did get aggravated again and began to bleed, and the skin around his bottom got burned by the chemo (coming out in wet/dirty diapers), but once I clean him up (carefully, since it hurts him) and soothe the area with cream, he seems to be fine and dandy. Just pray that the fissures don't get infected and that that the burn clears up quickly.
I just can't fully express how thrilled I am with how well he did. They discharged us last night and we got home around 9:30, and even this morning, Ethan is so active and happy. It's amazing! Nothing short of God's mercy, protection and grace... so thank you so so so so so so much for praying for him. Your prayers have certainly been answered along the way. His central line still has the large scab over the insertion site (place where the tube enters his chest), but the nurses/doctors didn't seem too concerned about it. It is a rather large scab, but it doesn't seem to be affecting the actual line itself (meaning the tube is still open and active, which is good!). The spongy medical patch that stuck to it a couple of weeks ago has almost completely come off with each cleaning and bandage change we have to do each week. Continue to keep his central line a part of your prayers for him as we want it to always remain "infection-free".
No new update on his transplant date, but we will find out more later this week. Please continue to pray about his spleen. I really don't want him to have to go through surgery right before his body has to go through transplant. It is a little bit smaller and softer today - after the chemo - so I'm praying it will stay that way and we don't have to be faced with a decision to take it out.
You're prayers are a wonderful part of our lives. Thank you so much for that!