Thursday, May 15, 2008

Some Answered Prayers

Answered prayer #1:
As of 3:45 this afternoon, Ethan has not shown any side effects such as he had last time (no sores in his mouth, no swollen eyes) I am THRILLED about that!

Answered prayer #2:
I was able to connect with our case manager in Boston and he told me we will be going next week for our initial consultation. He needs to confirm with the doctor's schedule, but will follow up with me tomorrow morning on the date and time. I'm so happy to have finally established "contact" with someone up there!

Answered prayer #3:
We DO get to go home tomorrow! We will begin his Accutane medication and antibiotic by mouth while we are at home (be in prayer all of that goes smoothly once again), but I don't mind doing whatever we need to do since we will be in the comforts of our own home!

Ethan's bottom is still a little raw, but he doesn't seem to be in pain. I can tell when I change his diaper and have to thoroughly clean the area, he doesn't flinch a bit! Thank you, Lord! It still needs healing, but I'm so glad he doesn't appear to hurting from it. Pray also that his stools start to be a little more solid... they are still a bit loose and frequent. Pray that his immune system doesn't pick up any infections, and that we're able to be problem-free during our time at home.

He is sooo cute and active! He loves rolling all the time now and even when you're trying to change his diaper! He smiles at everyone, and only cries when he's hungry/needs a burp, bored or tired - just like a typical baby. It is such a blessing to be with him all day and see his personality continue to form, and THAT is the silver-lining in the midst of such a storm.

I also wanted to mention that I've now met 2 moms who both have sons that were diagnosed with JMML and though each of their journey's were different (one was particularly hard, with a 6 month hospital stay at one point!), their boys are in remission today and continue to be strong. Thank you, Lord for the encouragement of these situations and for bringing these ladies into my life... thank you for the healing in their boys... and for your continued work in Ethan's life.

10 comments:

Carrie Comstock said...

What wonderfully encouraging news about the answered prayers!!! Praise the Lord. We continue to pray and stand with you in faith.

I am so thankful that the Lord brought these survivors and their stories into your life. I know that must be such a wonderful encouragement.

So happy to read such a great report! Enjoy your time at home.

carleigh said...

hope you have another great "vacation" at home! so glad to see that things are going well, and the other little boys survival stories are so encouraging to you! still praying!!

Linsey said...

I am so glad you have some other moms who have surviving boys. What a blessing to not feel alone in your struggle!

Hollie said...

PRAISE GOD, PRAISE GOD, PRAISE GOD!!! This was such great news to read...all of it! Especially the part about maybe going home tomorrow!!! YEA!!!

I am so glad you are also in contact with someone about the consult...I will keep praying that it happens in a timely manner!

And that is awesome that you have met other moms with sons...I know that is encouraging!

Still praying hard! I love that Ethan is so happy...sweet boy! HUGS!!!!!

Anonymous said...

I am so glad to hear all the good news! I will continue to pray that things go well for you guys. There is a whole lot of people praying for you guys, it is a wonderful thing. My mom's church has put you guys on their prayer chain too. I pray that you and Adam continue to find Gods strength in all of this. Both of you have shown so much already and it is amazing to see. I know Ethan's little body will continue to fight this and he will heal. God bless.

Grandma Kay said...

Dear Kasey & Adam,
I can not tell you how much I love reading your journal. I think that some day it may need to be publish. Your words touch deep places in my own heart & spiritual walk. We all have trials & though yours is great, you are being used to encourage me in my spiritual walk
On another note. I have shared with a security guard Ethan's story & he made plans to become a marrow donor. Last night he told me that he was rejected because an old health problem. He was really upset that he could not do his part to try to help your sweet baby boy.
You continue to be in my prayers. Kay Hayes

Janelle & Ella said...

Yea!! This is so exciting. Praise the Lord! I am so happy that you get to go home tomorrow.

Anonymous said...

Praise the Lord! God truly does bless the ones that stay faithful to Him.
michelle

Grandma Kay said...

Dear Kasey & Adam,
I can not tell you how much I love reading your journal. I think that some day it may need to be publish. Your words touch deep places in my own heart & spiritual walk. We all have trials & though yours is great, you are being used to encourage me in my spiritual walk
On another note. I have shared with a security guard Ethan's story & he made plans to become a marrow donor. Last night he told me that he was rejected because an old health problem. He was really upset that he could not do his part to try to help your sweet baby boy.
You continue to be in my prayers. Kay Hayes

Grandma Kay said...

Dear Kasey & Adam,
I can not tell you how much I love reading your journal. I think that some day it may need to be publish. Your words touch deep places in my own heart & spiritual walk. We all have trials & though yours is great, you are being used to encourage me in my spiritual walk
On another note. I have shared with a security guard Ethan's story & he made plans to become a marrow donor. Last night he told me that he was rejected because an old health problem. He was really upset that he could not do his part to try to help your sweet baby boy.
You continue to be in my prayers. Kay Hayes