Answered prayer #1:
As of 3:45 this afternoon, Ethan has not shown any side effects such as he had last time (no sores in his mouth, no swollen eyes) I am THRILLED about that!
Answered prayer #2:
I was able to connect with our case manager in Boston and he told me we will be going next week for our initial consultation. He needs to confirm with the doctor's schedule, but will follow up with me tomorrow morning on the date and time. I'm so happy to have finally established "contact" with someone up there!
Answered prayer #3:
We DO get to go home tomorrow! We will begin his Accutane medication and antibiotic by mouth while we are at home (be in prayer all of that goes smoothly once again), but I don't mind doing whatever we need to do since we will be in the comforts of our own home!
Ethan's bottom is still a little raw, but he doesn't seem to be in pain. I can tell when I change his diaper and have to thoroughly clean the area, he doesn't flinch a bit! Thank you, Lord! It still needs healing, but I'm so glad he doesn't appear to hurting from it. Pray also that his stools start to be a little more solid... they are still a bit loose and frequent. Pray that his immune system doesn't pick up any infections, and that we're able to be problem-free during our time at home.
He is sooo cute and active! He loves rolling all the time now and even when you're trying to change his diaper! He smiles at everyone, and only cries when he's hungry/needs a burp, bored or tired - just like a typical baby. It is such a blessing to be with him all day and see his personality continue to form, and THAT is the silver-lining in the midst of such a storm.
I also wanted to mention that I've now met 2 moms who both have sons that were diagnosed with JMML and though each of their journey's were different (one was particularly hard, with a 6 month hospital stay at one point!), their boys are in remission today and continue to be strong. Thank you, Lord for the encouragement of these situations and for bringing these ladies into my life... thank you for the healing in their boys... and for your continued work in Ethan's life.