Wednesday, May 7, 2008

Back to the hospital

I received a very wonderful email that informed me that registering with the National Bone Marrow Registry is free for the two weeks around Mother's Day. For those of you who have expressed a general interest in wanting to get added to the Donor Bank, I've included the link with the information.

Also, I have a three updated prayer requests:

1. Ethan will be re-admitted to the hospital tomorrow (Thursday) to start his IV chemo again. He had some painful side effects the last time (mouth/esophagus/rectal sores and swollen eyes), so they are stretching the chemo over 6 days as opposed to 4. Please be in prayer that the chemo will do what it needs to do with Ethan's blood cells and that it will help to shrink his spleen (we want to avoid having to take his spleen out). Please also pray that the side effects will not be as painful for him this time - or as scary for mom and dad!

2. Continue to pray for a bone marrow match to be found quickly (the search is currently underway).

3. Boston Children's hospital has received Ethan's case file from our hospital in Connecticut. Please be in prayer that they call us very soon for an initial consultation to discuss the details of everything that will take place when the bone marrow transplant is ready.

And finally, I found out about a family who had a son that was diagnosed with JMML (same as Ethan) and was so encouraged due to how rare it is. They experienced a miracle with their son, just as we are praying for Ethan. I wanted to share their website with you as I was encouraged while reading it this morning. Click on "My Story" when you get on the site.

Daily thanking God for each of you....


Papa & Mimi said...

Kasey,& Adam
We are praying specifically as Matthew 7:7-11 teaches us. "Ask, and it shall be given you; seek, and ye shall find; knock, and it shall be opened unto you: For every one that asketh receiveth; and he that seeketh findeth; and to him that knocketh it shall be opened. Or what is there of you, whom if his son ask bread, will he give him a stone? Or if he ask a fish, will he give him a serpent? If ye then, being evil, know how to give good gifts unto your children, how much more shall your Father in heaven give good things to them that ask him?

Anonymous said...

thank you for the updated prayer requests. we will be specifically asking God to make to side effects to be minimal or non-exsisting. have a wonderful day. i'm praying that God gives you a specific blessing today that keeps you in awe of Him.
michelle from mi.
James 5:16
"Confess your faults one to another, and pray one for another, that ye may be healed. The effectual fervent prayer of a righteous man availeth much

Janelle & Ella said...

I will definitely be in prayer for this round of chemo!!

Anonymous said...

I just heard about you through a friend of a family member of a friend, etc. and read your blogs. What continually amazes me is your God-given ability to put all your thoughts into words and be so open. You've allowed thousands of people a little glimpse into your heart, not hiding your fears, anger, disappointment, but also allowing us to see your triumphs, your faith, and most of all, letting us see Christ through you. In a time when you need blessing from others, you have been blessing others with your words. I pray your prayers will be answered regarding the bone marrow transplant and that you'll have strength from the Lord to go through whatever He has for you and your family.

Carrie Comstock said...

Thank you for sharing the specific requests. I will be praying for those. Thank you also for sharing Parker's site. Reading his story gives such hope!

Anonymous said...

Thank you for giving those updated prayer requests! Our family will truly be praying for those specifically. We live in Birmingham so the story you posted about Parker really hit home since his story took place in our neck of the woods! We are praying that God will give you strength, and we are praying that God will perform a miracle in Ethan!
Cathy Lang