Friday, April 25, 2008

Small Joys

Thank you for praying about Ethan's "medicine issue". Last night ended up being a successful night of medication. I say, "ended up being", because at first it was a mess.... literally. We tried the syringe thing again (which was the first way we tried to give him the medication on the first night). I have never seen him shoot/spit anything out of his mouth so fast! All of the medicine ended up all over his shirt. We had to call the pharmacy to get another syringe of medicine and try again. The chief nurse then came in and (after adding cherry syrup) gave it to my boy quite easily. She gave him a little at a time, and between her breaks I gave him a bottle nipple full of sugar water. It all worked beautifully. Not one single tear, not one single peep! We were all a lot more relaxed after that. Let's hope the next 7 nights go as smoothly.

Today is going to be a fun day for mommy and son... well, probably more so for mommy. Being at a children's hospital, they have a lot of interactive activities, toys, entertainment for kids who have to stay here. Well, obviously Ethan is a bit too young for basically all of those things... but I was told about some fun things that I can do with Ethan that are actually really special. Today one of the ladies from the Creative Child Dept. (here at the hospital) will be bring some special type of clay so that we can take a mold of Ethan's feet. How cute is that! I'm not quite sure what he will think of it, but I know I will love it!


You don't consider it "normal" (by way of understanding or comprehension) that you child has a life-threatening cancer, but I am so thankful at how "normal" Ethan is in every other way. His personality still shines, his smiles and sounds are absolutely precious, he loves to look at the mobile on his crib and crack himself up, he still eats well with a bottle (and has a healthy appetite!), still likes to be rocked and cuddled, is still meeting all of his other developmental goals for his age, and still likes to cry mad tears when he wants your attention/to burp/to eat.... this disease has not robbed us of continually enjoying our sweet little boy, and has not robbed him of just being himself.

What a special blessing that is... every day.

"He is able for the hardest occasions. He loves the hour of extremity. It is His chosen time of Almighty interposition" (excerpt from Springs in the Valley).

11 comments:

Anonymous said...

Praise the Lord ethan took his medicine. another answer to prayer! have fun making a mold of ethan's feet. what a precious time!
praying for a miracle,
michelle

Anonymous said...

Kasey and Adam;
We continuously pray day in and day night with our coworkers friends family and even neighbors that Ethan continue on his road to recovery. I sure am glad the old saying is true that a teaspoon of sugar helps the medicine go down. God bless you all.
Desira Chapdelaine

Bryana said...

Well I just noticed on the very bottom of your blog that it had the number of vistors - there have been 282 visitors to your blog since yesterday! Wow- there are so many people praying for your family! thats amazing! I'm glad Ethan did well with the medicine!- I'm sure that is more heartbreaking for you to watch then anything else! I pray today that you two have just an awesome day today- It'll be nice to get a break from the daily routines! And then I'm also going to pray that you get a really good night sleep- I've noticed that you write most of your postings really early in the morning :) Have an incredible day Kasey! We continue to pray for you all! Bryana & Ryan

Carrie Comstock said...

What great news about the medicine!! Have a precious time today making the mold.

carleigh said...

the mold thing sounds fun!! i did something similar with my kids- with paint and ceramics. it is definitely one of those things that you will cherish forever. i'm so glad that you are seeing the good in things kasey. you will be blessed for your attitude! i don't think i could handle things as you have!

April R said...

We're so glad Ethan took his medicine! What a blessing to have an experienced nurse to help. We're continuing to pray for Ethan, the both of you and his medical team. Miracles happen! We want to see that mold of his feet :) PS-we put Ethan on a church Heartline that goes out to a couple thousand families. They WILL pray for him.

Moz & Pam said...

Awesome! Yet another answer to prayer! We have a mighty God! Praise His name!

Kim said...

Praise the Lord for that answer to prayer!!
Enjoy making the little foot molds, try to make his hands too, that will be so fun and memorable I am sure!
Still praying for healing and rejoicing in the small things.
Love, Kim & Gary

Anonymous said...

Kasey and Adam;
You and little Ethan were on my mind today. When I read your blog I noticed that Wednesday was Ethan's 3 month Birthday and it was my daughters as well. As I held my daughter tonight, I couldn't even begin to imagine how difficult this time is for you and what you must be feeling. Your strength and Faith through this terrible trial has continued to be such an inspiration to me. I noticed that you were feeling low the other day and I just want to pass this verse along:

Exodus 17:12
When Moses' hands grew tired, they took a stone and put it under him and he sat on it. Aaron and Hur held his hands up—one on one side, one on the other—so that his hands remained steady till sunset.

It is understandable that you will go through highs and lows, but know that when you are feeling weak, there are thousands of people praying for you and little Ethan. You are continually in my prayers and on my heart. May God deliver sweet Ethan's miracle.

Tammy, Jon & Isabella

The Trull Family said...

Kasey,
It continues to amaze me how big our God is, and how He is using you in this time of trial. Thank you for your undying faith and hope... it is a source of encouragement to me and I'm sure everyone who reads this blog.

We have a song that we just started singing at our church... I think of you guys every time I sing it. In Ps. 23:4 it says, "Even when I MUST walk through the darkest valley, I fear no danger, for You are with me..." This song speaks of this valley and the fact that in all the circumstances we find ourselves in, God will never let us go.
The lyrics are below. The author is Matt Redman.
You can go to his myspace to listen if you want. (You have to be signed in to yours to see it, tho!)

http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendid=120781688


Love you so much! Ami Trull

YOU NEVER LET GO
Even though I walk through the valley of the shadow of death
Your perfect love is casting out fear
And even when I’m caught in the middle of the storms of this life
I won’t turn back
I know You are near

And I will fear no evil
For my God is with me
And if my God is with me
Whom then shall I fear?
Whom then shall I fear?

Oh no, You never let go
Through the calm and through the storm
Oh no, You never let go
In every high and every low
Oh no, You never let go
Lord, You never let go of me

And I can see a light that is coming for the heart that holds on
A glorious light beyond all compare
And there will be an end to these troubles
But until that day comes
We’ll live to know You here on the earth

Yes, I can see a light that is coming for the heart that holds on
And there will be an end to these troubles
But until that day comes
Still I will praise You, still I will praise You

Anonymous said...

Kasey and Adam,
We continue to pray!
Your blog has been a shining light to our Sunday School class!
"Let your light so shine before men, that they may see your good works, and glorify your Father which is in heaven." Matt 5:16
Matt Minahan
(Dave and Tracie Bates' Sunday School teacher - North Charleston,SC)