We got to see Ethan's primary oncologist who set up Ethan's treatment protocol back at Ethan's initial diagnosis. He built the "plan" and others helped execute it, but it was good to see him. He walked by our room and stopped in to see how things were going with Ethan. I was able to have a good conversation with him about Ethan's skin issues. The good news is (and I've known this was true) that Ethan's rashes are all a result of his cord blood transplant and his body still accepting the newly growing cells. The bad news is, these types of rashes are never easy to treat and have many root causes (fungal infections, etc). We discussed a plan we're going to be using this week to see if there's any improvement. It requires one ointment on the upper part of his face, and a different ointment on the lower part of his face. For you leukemia mom's out there - and anyone else who's curious - we're treating the upper with Protopic and the lower with Nystatin. And treating the diaper area with an anti-fungal cream (Vusion). Pray these do the trick!
Ethan brought tears to all the nurses when it was time to draw his blood. It was so sad.... he screamed and cried as soon as they walked in.... he just knew. But thankfully again, they found the vein the first time, and got all the blood they needed quickly. And he even got a toy afterwards.
All in all, a very good visit. I'm hoping we start seeing changes in his face and eyes soon. And I'm trusting the details to the Lord. I make myself crazy when I try to figure out all of this on my own and get too caught up in the in's and out's of it all. I was reminded today, to leave it all in God's capable hands. Maybe that was the reason for all of this anyway.... a lesson for this momma of "letting go" and trusting Him.
Thank you so much for your prayers! I read this verse and thought of you, my blog family... our prayer warriors. I pray God blesses you for every kind action done and prayer you've ever spoken on our behalf!
The generous soul will be made rich,
and he who waters will also be watered himself.
Proverbs 11:25
4 comments:
I just wanted you to know that i have been following Ethan's story from the beginning. I don't even remember how I found your blog, but I have been praying for him and for your whole family since he was diagnoised with cancer. I am beieving the Lord for his Full complete recovery. I also wanted you to know Ethan was part of the inspiration for me to train for a 1/2 marathon which I will be doing in April with Team in Training which raises money for the Leukemia and Lymphoma Society. I was wondering if you had any stories of how they might have helped you in this process. If you do, could you email me at worldchanger77@hotmail.com. Also, if any of your friends and family want to join me in raising funds for the research that LLS does, they can donate for my race at http://pages.teamintraining.org/tn/cmc09/mhumbert.
Thanks and may God continue to bless you as He leads you in this next season of life!
So glad to hear such a great report!
Yea God!
Hi Kacey :) I "stumbled" upon your blog this morning (through a friend and then Drama Mama's blog). Proverbs 11:25 was a verse the Lord gave me during my time with Him this morning...which prompted me to stay and read awhile. I just want to share with you that He has done a beautiful work in you and although your blog family has watered you much through all that you have been through...you are watering so many through the word of your testimony! I am one that was watered by you today...and for that, I am grateful. Thank you for having the courage to press deep into Him and allow Him to accomplish all that He has in you. He has truly given you beauty for ashes (Isaiah 61:3)...not just in your son, but in you as well. May the Lord continue to bless you richly. Love from a fellow Texan :) - Luci
Hi, you don't know me, but I am a Christian and I stumbled upon your site quite some time ago and I just wanted to let you know that I'm praying for your son Ethan and for you too. Both of you inspire me.
Can I say a little prayer here?
Lord, we thank You for watching over and blessing Ethan through all he's been through. I don't understand why babies get sick and stuff like that. It's just not right, but Lord, You are gracious, merciful and loving and we know that to be true and we hang onto You. Please continue to bless Ethan and heal him and give his mommy strength and grace enough for each day, in Jesus' name, Amen.
Wishing you all Heavenly Blessings,
Joyce
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